Compare age, diagnosis eligibility, medical staffing, transfers, respiratory support, medication handling, accessibility, cost and application deadlines directly with each program.
What this means in real life
MDA Summer Camp generally serves children and teens with neuromuscular disease at no cost to families, with age ranges and locations listed for each season. Jett Foundation’s Camp Promise offers free camp and year-round programming for children, teens and adults with neuromuscular disorders. Availability, ages, medical criteria, personal-care support and application deadlines vary by location and year.
Ask specifically about medication administration, transfers, toileting, ventilation/cough assist, overnight turning, accessible activities, staffing ratios and emergency transport. A program described as medically supported may still require the family to supply a trained attendant for certain needs. Apply early because health forms and clinician orders take time.
The right camp balances independence and safety. Include the camper in goals, communication and care routines; provide a concise care plan and practice any new separation or equipment procedures beforehand.
A practical checklist
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Check current official dates, ages, locations and application deadlines.
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Discuss transfer, personal-care and respiratory needs before applying.
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Complete medication and emergency orders early.
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Ask about financial support and accessible transportation.
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Prepare a camper-led care/preferences summary.
Questions to bring with you
Use these at the clinic, school meeting, equipment evaluation, program interview or benefits call. Write down the answers and who owns the next step.
- Can this site safely support the camper’s overnight and respiratory needs?
- Is a personal attendant required or provided?
- How are medications and emergencies handled?
- Which activities are independently accessible?
- What costs, equipment and transport remain the family’s responsibility?
Important context
Programs, products and individual preferences vary. Verify current details directly and involve qualified professionals when safety, medical care, benefits or legal rights are affected.
Sources used for this guide
Direct links are included so families can check the original guidance and bring it to qualified professionals.
Content review: July 18, 2026. Medical labels, trials, benefits and programs can change after publication.
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