Find the help you need along your DMD journey.

A strong first stop for stage-based care guidance, Certified Duchenne Care Centers, state resources, advocacy, newly diagnosed support, and parent connections.

Personalized guidance and direct assistance for equipment, home modifications, clinic travel, accessible vehicles, government programs, and urgent family needs.

Duchenne-specific support including accessible vehicle fundraising, equipment assistance, emergency grants, family workshops, education, and camps.

One-to-one help for Duchenne families facing insurance denials, treatment-access barriers, Medicaid coverage problems, and complex appeals.

Culturally responsive education, advocacy, navigation, and one-to-one family support delivered entirely in Spanish, with deep Duchenne expertise.

A nationwide neuromuscular network offering care-center connections, a Resource Center, equipment-assistance programs, education, advocacy, and camps.

Duchenne research investment plus one-to-one family education, physical-therapy guidance, care and clinical-trial navigation, and community workshops.

Assistance for Duchenne families with uncovered needs such as accessible vans, service dogs, lifts, ramps, travel, and independence-building support.

Focused on advancing Duchenne research and supporting the Duchenne Program at UMass Chan, a multidisciplinary program integrating research and care.

New Jersey-based Duchenne nonprofit raising awareness and directing support toward research intended to accelerate treatments.

A Duchenne-specific foundation established to advance treatment research and an ultimate cure through patient-focused research funding.

Indiana-focused practical assistance for people with muscular dystrophy, including mobility, accessibility, equipment, and quality-of-life support.

A Nebraska resource working to reduce barriers for local families affected by Duchenne and DEGS1, improve access, build understanding, and support research.

Michigan-based Duchenne organization funding research and partnering on the nationwide Duchenne Family Assistance Program for practical family support.

A small Arizona family-founded organization supporting day-to-day life, Duchenne awareness, and research toward a cure.

California Duchenne organization focused on education, aquatic therapy, community support, family programming, and research advocacy.

California family-founded effort with documented work in Duchenne research fundraising and help for devices, home access, and vehicle modifications.

Connecticut Duchenne nonprofit supporting research, benevolent family assistance, awareness, and advocacy.

Connecticut nonprofit biotechnology organization developing individualized genetic medicines. Duchenne-related, but broader than Duchenne alone.

Indiana-focused help navigating Medicaid waivers, paid-family-caregiver programs, education, family events, and state systems.

Massachusetts Duchenne organization offering a durable-medical-equipment loan closet, adaptive recreation, family support, and research fundraising.

Massachusetts-based support for teens and young adults across rare diseases, focused on independence, education, work, recreation, and transition.

New Hampshire Duchenne foundation supporting clinical-trial and muscle-preservation research, family quality of life, and outreach.

New Jersey Duchenne nonprofit investing in clinical research, building public awareness, and providing direct support to families.

New York Duchenne organization funding research and helping with medical equipment, accessible vehicles, and family support.

New York Duchenne organization focused on research fundraising, community education, awareness, and international advocacy.

Central Ohio Duchenne organization offering quality-of-life grants for adaptive bikes, ramps, stair lifts, gaming systems, and experiences.

Duchenne organization building awareness, family resources, and community fundraising through programs including Run Out Duchenne.

Tennessee Duchenne foundation supporting scientific research, including work focused on cardiac complications of Duchenne.