Start with an OT/accessibility assessment and a staged plan: entry, bathroom, sleeping, transfers, turning space, electrical/charging, emergency exit and future lift needs.
What this means in real life
Plan home modifications in the order that reduces the greatest daily risk and preserves the most independence. Start with a home assessment and map entry/exit, bathroom, bedroom, transfers, turning space, charging, caregiver access and emergency evacuation. A beautiful bathroom is not useful if the wheelchair cannot reach it or the lift route fails.
Common first priorities are a safe entrance, an accessible toilet/bathing route and a sleeping/transfer setup on an evacuable level. Then address doorways, flooring, sinks/work surfaces, storage and technology. Anticipate the size and turning radius of a future power chair, lift track, hospital bed and caregiver—not only today’s equipment.
Separate immediate low-cost changes from structural work. Obtain OT/accessibility recommendations and multiple itemized quotes before construction because Medicaid waivers and grants often require prior approval and will not reimburse completed work.
A practical checklist
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Map the hardest five daily routes and emergency exit.
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Request OT/accessibility assessment with future equipment dimensions.
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Prioritize entrance, bathroom, sleeping and transfer safety.
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Get code-compliant plans and itemized quotes before work.
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Apply for funding before signing contracts or paying deposits.
Questions to bring with you
Use these at the clinic, school meeting, equipment evaluation, program interview or benefits call. Write down the answers and who owns the next step.
- Which change removes the most transfers or caregiver lifting?
- Will a future chair and lift fit?
- Can the person evacuate during fire or power loss?
- What permits and inspections are required?
- Which program requires pre-approval?
Important context
Individual needs, eligibility and safety can differ. Confirm the plan with the relevant Duchenne-experienced clinician, therapist, school team or program before acting.
Sources used for this guide
Direct links are included so families can check the original guidance and bring it to qualified professionals.
Content review: July 18, 2026. Medical labels, trials, benefits and programs can change after publication.
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