Balance regular safe activity with planned rest and powered mobility for distance. Avoid eccentric/overexertion-heavy exercise; use the neuromuscular PT to individualize intensity and recovery.
What this means in real life
Energy conservation means using limited muscle capacity for meaningful activity rather than spending it on long transitions or repetitive tasks. It does not mean avoiding all movement. Regular submaximal activity, gentle range work and participation can support health, while high-resistance, eccentric or exhaustion-based exercise can cause prolonged soreness and muscle injury in DMD.
Use powered mobility for distance, elevators instead of stairs, duplicate supplies and seated task options so energy remains for learning, friendships and self-care. A good rule is that activity should not cause pain, dark urine, marked weakness or fatigue that lasts into the next day. The right level varies with disease stage, cardiac/respiratory status, contractures, heat and illness.
A DMD-experienced physical therapist should create a plan that distinguishes safe aerobic participation, stretching, standing and daily activity from strengthening programs designed for nondystrophic muscle.
A practical checklist
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Track which activities cause prolonged fatigue, soreness or missed participation later.
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Use mobility and environmental shortcuts for distance and repetitive tasks.
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Favor enjoyable, submaximal activity with rest and hydration.
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Avoid maximal resistance and repeated eccentric loading.
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Review the plan after functional, cardiac or respiratory changes.
Questions to bring with you
Use these at the clinic, school meeting, equipment evaluation, program interview or benefits call. Write down the answers and who owns the next step.
- How should intensity be judged for this person?
- Which activities create eccentric loading?
- How much recovery is acceptable?
- Where would powered mobility increase—not reduce—participation?
- What symptoms require stopping and contacting the team?
Important context
Individual needs, eligibility and safety can differ. Confirm the plan with the relevant Duchenne-experienced clinician, therapist, school team or program before acting.
Sources used for this guide
Direct links are included so families can check the original guidance and bring it to qualified professionals.
Content review: July 18, 2026. Medical labels, trials, benefits and programs can change after publication.
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